O'Fallon Progress

CrossFit Voyage hosting fundraiser for 6-month-old with infantile spasms

CrossFit Voyage will hold a fundraiser for a case of infantile spasms at 9 a.m. Saturday, May 16.

People can register at https//:mightymarek.eventbrite.com.

Marek Harres, affectionately known as Mighty Marek, was diagnosed with infantile spasms in January 2015. Infantile spasms are seizures seen in infancy and childhood characterized by spasms and developmental regression. Mighty Marek stopped meeting normal developmental milestones at 4 months old and stopped progressing developmentally at approximately 5 months.

Three medications exist to reduce the sometimes 30-minute spasms. Mighty Marek has tried and failed two out of the three medicines. He has recently started the third medication; though the financial burden of providing this necessary medication has become heavy for Marek’s parents, Krysten and Ryan Harres.

CrossFit Voyage is hosting a fundraiser to help the Harres family raise money for the medication that could help Mighty Marek. The fundraiser is a workout to show how “mighty” the community can be. Two-person, same-gendered teams will compete in a series of prescribed or scaled Workouts of the Day (WODs). Registration by Thursday, April 30, will guarantee a “Mighty Marek” shirt in the requested size.

The Harres Family stated, “We are still waiting and praying for this medication to work. Please come share your support of this family and show Marek that you are mighty too!”

The event location is CrossFit Voyage, 102R W. State St., O’Fallon, Ill.—location is subject to change due to registration numbers.

Join CrossFit Voyage in showing Marek how “mighty” the community can be in supporting his condition. “Like” the event on Facebook at www.facebook.com/marekwod for updates and WOD details and keep up with the Harres’ blog at https://mightymanmarek.blogspot.com to learn more about their journey. For questions or comments about the event, contact Stephanie Robertson at CrossFitVoyagePR@gmail.com.

Founded in 2014, CrossFit Voyage provides a structured program of fitness and strength training based on functional movements utilizing the best form of gymnastics and Olympic weightlifting along with personal training. Learn more about CrossFit Voyage at www.crossfitvoyage.com.